November 24
Jason's surgery went well on the Tuesday, the 17th, and we were back to our Jacksonville home at around 1 pm. After getting him settled in, I received a phone call to verify his spinal tap and spinal chemotherapy the next morning. They could not do it later in the week so we were up early and back at the hospital the next day. It was a very difficult day for Jason and I was glad to get him home afterward. Thursday through Sunday were very difficult days with nausea and terrible headaches. He could not tolerate sitting up or standing and spent the next five days flat in bed. This is caused by the spinal fluid leaking at the site of the tap. It is necessary to to wait for it to heal on its own or have a "blood patch" to seal it off. He decided to wait and try to make it through the weekend without having to go to Emergency. He woke up Monday feeling much better, able to walk and sit. We have another appointment for the same on Wednesday and are hoping that this time won't be so hard. We have no plans for the holiday, just a small dinner whenever Jason feels up to eating.
Have a wonderful holiday with your families and friends! Thank you, to each and every one of you, for the thoughts and prayers, cards, emails, kind words, donations and ongoing concern. We are so grateful for everything and words cannot express it. It is the most amazing thing we have ever experienced! Bless you all.